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MPD Patient Support Group DirectoryThe MPD Foundation has compiled a list of in-person and online MPD patient support groups. There are two features on this page: 1. Listed directly below are MPD patient support groups that meet locally, both within the U.S. and internationally. 2. Further down the page we have listed the online MPD patient support groups, a wonderful resource for those who prefer online communication with other patients. MPD Patient Support GroupsIf you are interested in joining an MPD patient support group but do not see an area close to you listed, contact Ann Brazeau at abrazeau@mpdfoundation.org or 312-683-7226 to discuss options. If you have a MPD patient support group but are not listed below, or would like help recruiting more MPD patients, please also contact Ann Brazeau. United States New patient support group forming for North Carolina & South Carolina. If you are interested please contact Janice at jan@scotfd.com New patient support group forming in Hazelton, PA! If you are interested please contact Joe Murphy at jmmurphy@ptd.net Arizona New MPD support group forming in Phoenix. If you are interested in participating contact Kathy VanMeter at kathyvanmeter@cox.net or by phone at 623-326-2456 Arkansas Contact: JP Morgan at jpmorgan@hotmail.com Upcoming meetings: To be announced California Los Angeles Contact: Ron Anderson at randerson@activetech.com Upcoming meeting: January 31, 2010 Time: 2 - 4 PM Please RSVP with Ron for more details San Diego Contact: Antje Hjerpe jahjerpe@sbcglobal.net Upcoming meetings: San Francisco-Bay
Area Upcoming meetings: To be announced Colorado Denver Contact: Dianne dianne@systemsaverinc.com Upcoming meetings: To be announced District of Columbia Washington D.C. Contact: Arlen Rivera Elizee at elizee@lls.org OR 703-960-1100 X 291 Upcoming meetings: To be announced Florida Naples Contact: Bee Dee Greenfield at naplesmpd@yahoo.com Upcoming meetings: Sunday, January 31st Time: 1pm Georgia Atlanta Contact: Bonnie Evans at kbemje@bellsouth.net or 404-771-0010 Upcoming meetings: Sunday, March 28 2010 Time: 2 PM
Illinois Chicago Upcoming meetings: To be announced Maryland Contact: Jodi Navid at jodi.navid@jhuapl.edu Upcoming meetings: To be announced Michigan Lansing / Mid-Michigan Contact: Josephine Pompeo at jpompeo@landscapeamerica.net Upcoming meetings: To be announced New Hampshire Portsmouth (and greater New England) Contact: mpdnewengland@gmail.com Upcoming meetings: To be announced New Jersey New Brunswick Contact: Matt Weismantel matt.weismantel@rutgers.edu Upcoming meetings: To be announced New Mexico Albuquerque Contact: Shannon at mstscc@msn.com Upcoming Meetings: To be announced New YorkNew York City Contact: Susan Protter at sapla@aol.com OR 212-580-0115 Upcoming meetings: To be announced North Carolina Contact: Janice at jan@scotfd.com Ohio Akron / Cleveland Contact: Jay Schmitt at ohiompd@sbcglobal.net Upcoming Meetings: To be announced Location: Akron General Health & Wellness Center, 4125 Medina Rd., Akron, OH 44333 Cincinnati, SW Ohio, NE Kentucky, & SE Indiana Contact: Paul Kulback at paulkulback@ameritech.net or Rebecca Lubitz rebeccalub@aol.com / 513-793-3179 Upcoming meetings: To be announced Pennsylvania Philadelphia Contact: Marie at mtomp57083@comcast.net Upcoming meetings: To be announced Hazelton Contact: Joe Murphy at jmmurphy@ptd.net Puerto Rico San Juan Contact: Maribel & Michael Rey, P.O. Box 364885, San Juan, PR 00936 maribel.rey@gmail.com OR cpt.michael.rey@gmail.com Upcoming meetings: To be announced Rhode Island
Contact: Jay
Humphrey wwhumphrey@aol.com or
401-640-1500 South Carolina Contact: Janice at jan@scotfd.com Tennessee Knoxville Contact: Linda Tunstall at tunstalllinda@aol.com / 865-986-4566 OR Susn Nakamoto at homecall@bellsouth.net / 865-687-5502 Upcoming Meetings: 2010 meetings are as follows: January 21st, March 18th, May 20th, July 15th, September 16th, November 18th Time: 11:30 AM - 12:30 PM , July 15th, Location: Knox County Public Library, Farragut Branch, 417 N. Campbell Station Road, Knoxvill TN. Library phone # is 865-777-1750 Additional meetings: Meetings for the leukemia, lymphoma & myeloma network plus MPDs are held from 6-7:30 PM on the 2nd Thursday of every month at the Wellness Community, 702 Lindsay Place, Knoxville TN Note: Family members are welcome Texas Central Texas Area Contact: Alan at saalanc@hotmail.com Upcoming meetings: To be announced Washington Seattle Contact: Seattle MPD Yahoo Group Upcoming meetings: Found here if you become a group member Wisconsin Racine (Includes SE Wisconsin and NE Illinois) Contact: Marge Blocks mblocks@wi.rr.com / 262-637-4338 OR Karen Luba 262-552-7047 Upcoming meetings:
To be announced
Outside the U.S.
Australia Upcoming meetings: Announced through mpd-oz website Canada Saskatoon, Saskatchewan Contact: Gordon Walz g.walz@sasktel.net Upcoming meetings: To be announced Toronto, Ontario Contact: Kevin Brown kb@iconhomes.com or 416-420-2266 Upcoming meetings: September 11, 2009 Time: 6:30 - 9 PM Location: Princess Margaret Hospital, 610 University Avenue (south of College on University), at the main floor board room (M805). Notes: Dr. Minden, who runs the MPD research group, will be attending at 7PM to introduce a new MPD Fund. Germany Contact: mailto:MPD-Netzwerk@yahoogroups.de India Mumbai Contact: Shreekat Bihani at 932-337-6370 OR bihanishreekant@yahoo.com Upcoming meetings: To be announced Japan Contact: Kaori Taki (patchleojp@yahoo.co.jp) Upcoming meetings: To be announced Click here to order the Japanese MPD patient brochure Japan (English speaking) Contact: Ira Wolf at irawolf@aol.com Upcoming meetings: to be announced The Netherlands Contact: MPD Stichting at info@mpd-stichting.nl or 088-0074-300 Upcoming meetings and forum found here London
Upcoming
meetings: May be found here
Online MPD Patient Support Groups:MPD Chat is a Gmail group where cyber-friends connected by MPDs, can share troubles, swap information and share their stories. Posts are generally relevant to MPDs but connected issues such as fatigue, pain relief and depression often arise, along with a bit of general chat. We aim to have a happy group where people feel welcome and respected. On our main web site are MPD links, personal experiences of diagnosis and treatment, and a constantly updated database of articles on polycythemia vera, essential thrombocythemia, myelofibrosis and other relevant issues. Posts can be delivered to your inbox as they are sent, in a daily digest or you can read all the discussion on the site. Includes an online support group (MPD-Net), answers to frequently asked MPD questions, myeloproliferative disorder biographies and offers medical resources for polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia (Idiopathic Myelofibrosis), and on chronic myelogenous leukemia (CML). Myeloproliferative Disease Support and Free Daily Email Digest Since 1994, the MPDSUPPORT web site and free support email list has offered interesting information on chronic myelogenous leukemia, polycythemia vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia, and myelofibrosis. Anyone - patient, family member, or health professional, is welcome to join the growing list of subscribers. The archives are available for you to research information. You can subscribe to the daily digest list by either one of our two easy methods, the EZ web interface, or by email.
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