|
Other Information For MPD Patients
Friends
of ET Research
Formed by Celia and Don Miltz in 1999, Friends of ET Research is
a group of dedicated people sharing their time and energy to raise
funds for medical research into a rare disease known as Essential
Thrombocythemia (ET.) The Miltz family became aware of ET when their
daughter, Stephanie, was diagnosed following a mini-stroke (TIA)
at the age of 16. Their goal is to raise public awareness and fund
research efforts to find a cure.
MPD
Acronyms [PDF]
This is a PDF list that will help you translate the MPD abbreviations.
If you would like to see any other abbreviations included, please
contact Joyce Niblack at JNiblack@aol.com.
Blood
Test Results
This page explains the 'normal' reference ranges for blood tests
male and female, and other health related calculators.
Understanding
your Complete Blood Counts (CBCs)
A complete blood count, often referred to as a CBC, is a common
blood test. A CBC provides detailed information about three types
of cells in your blood: red blood cells, white blood cells, and
platelets.
ClinicalTrials.gov
ClinicalTrials.gov provides regularly updated information about
federally and privately supported clinical research in human volunteers.
ClinicalTrials.gov gives you information about a trial's purpose,
who may participate, locations, and phone numbers for more details.
ACRP
- Questions to ask when participating in a clinical trial
What is a Clinical Research Trial or Study? Important Questions,
Information Resources, The Basics, Fast Facts and a Glossary.
Learning
about Clinical Trials
This section includes information about what clinical trials are
and how they work, in addition to educational materials for both
patients and professionals.
American
Society of Hematology
The mission of the American Society of Hematology (ASH) is to further
the understanding, diagnosis, treatment, and prevention of disorders
affecting the blood, bone marrow, and the immunologic, hemostatic
and vascular systems, by promoting research, clinical care, education,
training, and advocacy in hematology. In addition to ASH’s
main patient information page, this site also offers free access
to review articles from Hematology, the Education Program
Book from its annual meeting, as well as a “Find a Hematologist”
feature to help match patients with practicing hematologists in
their area.
|
