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MPD Patient Support Groups
Listed below are local and online patient support groups for polycythemia vera, essential thrombocythemia and primary myelofibrosis patients. Contact the MPD patient support group coordinator nearest you or scroll to the bottom
of this page for online groups.
** A new patient support group is forming in Arkansas. For more information please email JP Morgan at jpmorgan@hotmail.com
Local groups:
Akron / Cleveland / N.E. Ohio
Contact: Jay Schmitt at ohiompd@sbcglobal.net
Location: Akron General Health & Wellness Center
4125 Medina Rd., Akron, OH 44333
Upcoming meetings: To be announced
Cincinnati, SW Ohio, NE Kentucky, & SE Indiana
Contact: Rebecca Lubitz rebeccalub@aol.com or 513-793-3179
Upcoming meetings: To be announced.
Atlanta, GA
Contact:
Mel Brantley mlbrsq@aol.com
Upcoming meetings: To be
announced
Australia
Contact: Ken Young kyoung@yarranet.net.au
or go here
to be added to the mailing list for MPD Australia.
Chicago, IL
Contact: Sarah Dreller smdreller@hotmail.com
Upcoming meetings: To be announced
Denver, CO
Contact:
Dianne dianne@systemsaverinc.com
Upcoming meetings: To be
announced
Germany
Contact: mailto:MPD-Netzwerk@yahoogroups.de
Upcoming meetings: May be found
here
Jackson Hole, WY
Contact: David Stokes destokes@earthlink.net or 805-969-4478
Upcoming Meetings: To be announced
Japan and Asia
Contact:
Kaori Taki (patchleojp@yahoo.co.jp)
Upcoming meetings: To be
announced
Knoxville, TN
Contact: Linda Tunstall at tunstalllinda@aol.com / 865-986-4565 OR Susan Nakamoto homecall@bellsouth.net / 865-687-5502
Upcoming meetings:
Meetings held from 6-7:30PM on the 2nd Thursday of every month at the Wellness Community, 702 Lindsay Place, Knoxville, TN.
*Please
note that family members are welcome.
London
Contact: info@mpd-support.co.uk
Upcoming meetings: May
be found here
Los Angeles, CA
Contact:
Becky or Mike Smith at 661-297-6218
Upcoming meetings: To be
announced
Mid-Michigan area
Contact: Ann Brazeau abrazeau@mpdfoundation.org or
312-636-3869
Upcoming meetings: To be announced
Montclair, CA
Contact:
510-654-5368
Upcoming meetings:
To be announced
*Please note that caregivers are welcome.
Naples, FL
Contact: Bee Dee Greenfield at naplesmpd@yahoo.com
Upcoming meetings: To be announced
New Jersey, New
York and Pennsylvania (meetings in New Brunswick)
Contact:
Matt Weismantel matt.weismantel@rutgers.edu
or
732-932-9342 x 2609
Upcoming meetings: Sunday, June 8th 12:30 - 3 PM in New Brunswick, NJ. Pleae RSVP to Matt at the above email or phone number.
Northeastern U.S. (NH, MA, RI, CT)
Contact: Jay Humphrey wwhumphrey@aol.com
or 401-640-1500
Upcoming meetings: To be announced
Puerto Rico
Contact: Maribel & Michael Rey
P.O. Box 364885,
San Juan, PR 00936-4885
Email: maribel.rey@gmail.com OR cpt.michael.rey@gmail.com
Upcoming meetings: To be announced
Racine, WI (Group
for SE Wisconsin and NE Illinois )
Contact:
Marge Blocks mblocks@wi.rr.com
or 262-637-4338
Karen Luba 262-552-7047
Upcoming meetings:
To be announced
San
Francisco-Bay Area
Contact: Susan Susanklepper@hotmail.com
Upcoming meetings: To be announced
Saskatoon, Saskatchewan
- Canada
Contact:
Gordon Walz g.walz@sasktel.net
Upcoming meetings: To be
announced
Seattle, WA
Contact:
Seattle
MPD Yahoo Group
Upcoming meetings:
Found here
if you become a group member
Toronto
Contact:
Kevin Brown kb@iconhomes.com
or 416-420-2266
Upcoming meetings: To be
announced
United
Kingdom
Upcoming meetings and forum found here
Washington,
DC
Contact: Sarah Singer
singers@dc-cap.leukemia-lymphoma.org
or
703-960-1100 x231
Upcoming meetings: To be
announced
Online
Patient Support Groups:
MPDinfo
Includes an online support group (MPD-Net), answers to frequently
asked MPD questions, myeloproliferative disorder biographies and
offers medical resources for polycythemia vera, essential thrombocythemia,
agnogenic myeloid metaplasia (Idiopathic Myelofibrosis), and on
chronic myelogenous leukemia (CML).
MPD
Support - L
Since
1994, our MPD-Support-L web site and free support email list offers
interesting information on chronic myelogenous leukemia, polycythemia
vera, essential thrombocythemia, agnogenic myeloid metaplasia, myelodysplasia,
and myelofibrosis. Anyone - patient, family member, or health professional,
is welcome to join our growing list of subscribers. Our archives
are available for you to research information. You can subscribe
to our daily digest list by either one of our two easy methods,
our EZ web interface, or by email.
Interested
in starting a local MPD Patient Support Group? Contact Ann Brazeau
for help getting started: abrazeau@mpdfoundation.org.
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